PEN-Powered Activity Guide II

PEN-Powered Activity Guide II

PEN - POWERED A CTIVITY GUIDE

Sharing inspiration, ideas, and encouragement

Updated version!

Contents:

Stay Connected

01

Tips and Resources

04

Recipes

09

Relax and Have Fun

16

CONNECT WITH YOUR FRIENDS , F A MILY , COLLE A GUES A ND NETWORK ON - LINE Throughout this guide you might notice we elected to use the term " Physical Distancing " rather than "Social Distancing" which is being used by the media and public health officials. We know that creating physical distance saves lives but the long-term effects of loneliness and social isolation can be detrimental to people affected by cancer, especially during times of increased distress. You can and should be practicing Physical Distancing but we encourage you to utilize the resources below to stay connected socially. Here are some ideas to get you started:

IDE A S TO ST A Y CONNECTED

Virtual Book Club Coffee "Meet-up" Yoga or Meditate

Video Chat

Movie Night

FREE GOOGLE HANGOUTS

GROUP FACETIME

W A YS TO ST A Y CONNECTED

Brings conversations to life with photos, emojis, and even group video calls

Chat with multiple people at the same time Available free on Apple devices

ZOOM FREE VERSION

NETFLIX PARTY

Video communications, with an easy, reliable cloud platform for video and audio conferencing, chat, and webinars

Watch Netflix with your friends online. Netflix Party synchronizes video playback and adds group chat to your favorite Netflix shows

01

TWEETCH A TS: WH A T A RE THEY & HOW DO I JOIN ? You're stuck at home - why not join a tweetchat and connect with other patients, care partners, and advocates like you.

WH A T IS A TWEETCH A T ?

A Tweetchat (sometimes known as a Twitter Chat) is a live event where a group of Twitter users come together to discuss a predetermined topic. To sift through all of the world’s tweets a designated hashtag (#) is used for each tweet contributed to the conversation. Each chat has a set start time, time limit, and a host that moderates. The moderator asks questions to prompt responses from the participants and helps get the conversation moving along. Cues are usually used such as T1, T2, and T3 for topics or Q1, Q2, and Q3 for questions 1 through 3 to provide context and clarity to both questions and responses. To participate in the chat, just include the hashtag in your tweet. Using the 'Latest' feature on Twitter or websites such as tchat.io can help by filtering out all other tweets so you can focus on discussing one topic and it automatically adds the hashtag to your tweets.

POPUL A R TWEETCH A TS

#patientchat | @patientchat Bi-weekly on Fridays at 1pm ET

#lcsm | @lcsmchat | Lung Cancer Social Media 2nd Thursdays at 8pm ET

#PANCChat | Pancreatic Cancer Chat Last Tuesdays at 8pm ET

#btsm | @BTSMchat | Brain Tumor Social Media 1st Sunday at 9pm ET

#ayacsm | Adolescent and Young Adults Cancer Chat First Tuesdays at 8pm ET

#bcsm | @BCSMChat | Breast Cancer Social Media Mondays at 9pm ET

#gyncsm | @gyncsm | Gynecologic Cancer Social Media 2nd Wednesdays at 9pm

#MMSM | Multiple Myeloma Social Media Chat Wednesdays at 3pm ET

02

THE IMPORT A NCE OF LIVING IN THE MOMENT

Jeff Bushnell and Summer Golden, MPN Network Managers at the Patient Empowerment Network share the importance of truly living in the moment. Summer shares how Betty Boop, her pink poodle, was diagnosed with lymphoma. Fortunately, Betty was able to pull through, emerging resilient. Both Jeff and Summer were inspired by Betty Boop, to redefine what it means to live in the moment. They both share how living in the moment has allowed them to cope with Summer’s diagnosis of Myelofibrosis.

What activities keep you living in the moment? Share it with Jeff and Summer! [email protected]

03

PHYSIC A L DIST A NCING ? T A KE A DV A NT A GE OF YOUR P A TIENT PORT A L Your patient portal is an ideal tool to communicate with your healthcare team. Depending on your portal, you should be able to:

REQUEST A PRESCRIPTION REFILL

Stay up to date on your prescriptions and request refills. You should also be able to view a list of your current prescriptions

COMMUNICATE

Communicate with your medical team through a private messaging system and take advantage of telemedicine resources

MANAGE APPOINTMENTS

View and manage your upcoming appointments. You may be able to make an appointment and view past visit summaries

VIEW YOUR LAB AND TEST RESULTS

View your lab test results. You may also be able to view your medical history

ACCESS RESOURCES

Access resources and tools provided by your healthcare organization, including trusted patient education sources

04

Created in partnership with Health Content Collective

HOW TO RE A D A RESE A RCH P A PER

Start with  title, abstract, and key words  – make sure the paper is what you were looking for and is worth your time and effort. The abstract tells you what experiment was done and what was found.

Read the Introduction  – This will give you the background for the question being asked and summarize the work done leading to this study. It also gives a background on the research area and references other studies.

Take it slow, make sure you understand what you are reading  – be prepared to look up terms, either online or by asking someone in the field. Highlight what you think is important and make notes.

Read the Results  focusing on the Figures and Tables. Make sure you understand the >Page 1 Page 2 Page 3 Page 4 Page 5 Page 6 Page 7 Page 8 Page 9 Page 10 Page 11 Page 12 Page 13 Page 14 Page 15 Page 16 Page 17 Page 18 Page 19 Page 20 Page 21 Page 22 Page 23 Page 24 Page 25 Page 26 Page 27 Page 28 Page 29

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